Kawasaki Triples Club

Windy wrote:

Brilliant news Malc

This has been massively educational so thank you for posting these hugely personal and emotional updates.

Windy

I’ll second that and excellent news Malc

That's really Great news.

11.32AM yesterday
Quick update from hospital Iain remains off the ventilator.
His oxygen has come down to 50% but it still too high to take him to a ward.
She said it’s normally within the first 24 hours that they get re-intubated and put back on the vent to later so they will certainly be keeping him on ICU today.
She said she’s tried to have a conversation with him this morning but he still a bit too drowsy but he is responding to commands that asking him which is good. At present he’s making good progress and they are pleased with what he’s doing so far. Xx

18.28 yesterday

Spoken to the doctor.
Iain has had another stable OK day.
He doesn’t feel he’s ready to leave critical care yet [which I am relieved about].
His oxygen requirements have gone down to 40% however this is still too high for him to be sent to the ward.
He said his chest does appear to be improving as otherwise his oxygen requirement wouldn’t go down.
He has started his antimalarial drug this morning with no adverse effects.
He has Stopped his sedation at lunchtime. He said he still very drowsy and he’s not talking but he’s responding to commands with nod of his head. He said the amount of sedation he was on was high so this will take a bit for him to wake up properly.
He said his cough has reduced and now it’s more that he feels like he’s got some thing in his throat which could be swelling due to the tube.
So overall he said he had an OK day and was progressing forward but we still need to take baby steps as it’s still very early on xx

22.40 yesterday

Very quick update.
Iain is now on 30% oxygen!
And is in nasal rather then mask.
They think he will go to the ward tomorrow.
He’s still very groggy but the meds will take a bit to come out of his system.
The nurse had looked after him last Night and couldn’t believe the difference in 12 hours.
I asked whether they found that COVID-19 patients when they turned a corner they turned a corner quite quick and she said yes with him being so young and fit he should just start to get better now xx

7.15 this morning

Hi so a difficult night.
Iain’s oxygen went down to 28% overnight however he vomited at 1AM.
Since then they have had to put his oxygen back up to 90% and are struggling to keep his oxygen levels up.
He’s had some nebulisers and been repositioned. She said they may have to reincubate him.
She rang back at 7AM this morning and said he seems to be settling.
They had got his oxygen down to 60% and are going to get chest physio to come and sit him up and work on his chest today.
She said she can’t guarantee he won’t need to go back on the vent as he’s not stable yet but he’s going in the right direction at the moment.
She said he’s quite delirious as he’s not slept and they would monitor him.
Keep those prayers up xx

Not quite the news we were hoping for as he was doing so well yesterday.
The hospital had said it wont be all plain sailing and to expect the odd blip.
This looks quite a big blip for Iain and we hope they can get him stable again today to keep him off the ventilator.
A real roller coaster ride with this terrible virus and we are remaining positive as afamily that they can once again get Iain under control.
He had two consultants with him for most of the night so we know it was a serious blip.
What a great job our national health service teams are doing and remember Iain is one of many.
The hospitals are full of covid19 patients.
Stay isolated to protect yourself and your own familys.

I’m sure it’s just a blip Malc
Everything seems to be going in the right direction
Still,keeping fingers crossed for your family

A new day and full of hope, as you were told, expect a blip, let's hope that was it.

Keep fighting!

I usually just update each morning but felt given the overnight news, and subsequent developments, i should update now as its more positive news.

From Sarah at 11.30 AM

I have spoken to the nurse.
She said he’s a lot more stable now.
They think he had a bit of a moment this morning. Apparently he pulled his mask off and pulled his NG tube out and then started vomiting .
They think some of the vomit has gone on to his lungs and that’s what was causing all the issues with the Oxygen.
His oxygen is now down to 40% .
He has been having a conversation with the nurses.
He has been able to help the nurse wash himself and he has had some chest Physio and bought up stuff .
She said he’s still poorly but he’s definitely a lot better off than he was this morning.
They have no plans to move him from intensive care yet as he is still poorly.
She said he’s tolerated feed this morning with his NG tube back in.
She said there is a phone next to him and if he’s up to it later they will get him to call me.
She said he is very sleepy still so may not be up to calling me.
Positive steps forward xx


Sarah added 10 mins later
The nurse said it was just a blip nothing major but to remember he’s still poorly.

Blimey what a roller coaster your family are on but hopefully its progressing in the right direction. It would be amaazong for Sarah and Callum to be able to talk to him on the phone even if he cant talk back that well

Hi Malc, firstly apologies for not sending my prayers for Iain and best wishes before. I thought I had but obviously forgot to hit the post button!
Great news that he is improving and let’s hope he is back home in the next few weeks.
Best wishes to you all
Clive

18.47PM yesterday

Hi I’ve spoken to the doctor.
It was the one that was looking after him over the weekend.
She said she definitely sees an improvement in him since Monday but he’s very very weak.
She said she’s done another chest x-ray and it does show his chest is improved however there are two areas of pneumonia.
His sputum has grown a bug which they have sent off that she said he’s very common in post ventilated patients therefore as he’s got no temperature etc. at the moment they will not treat it with antibiotics.
However if it comes back needing antibiotics they will.
She said he’s got a chest Physio in the bay which is helping him massively.
She said he’s bringing up a lot of sputum and his oxygen is up and down between 40% and 60% and they feel that it gets worse when he’s got to remove some of the sputum.
He’s been assessed by speech and language who feel his swallow is too weak at the moment.
Therefore he’s to continue with the NG tube and they will reassess when he’s a bit stronger.
She said he has held a conversation with her this afternoon albeit small but he’s very very exhausted.
She said he has been taken off the trial as his liver test went a bit haywire this morning and they feel it could be the antimalarial drug therefore stopped it.
They will review his blood tomorrow.
So she said he’s making progress but he’s going to be in intensive care for a little bit yet as he’s extremely weak and his oxygen levels are not quite what they like.
She said to expect him to be in for a while due to how weak he is and that they were literally just take it day by day.

7.56AM today

Hi the nurse that has looked after him the last few nights was on last night.
She said he’s remained on 40% all night and has been really settled.
She said he’s still delirious and is not sleeping great.
He is having strange dreams and generally wondering what’s going on.
Apparently it’s very common post ventilation and can last days to a week post extubation.
She said the drs will review today re staying there or not due to his oxygen requirement (hoping he stays there another day at least as he gets one to one care!) xx


Iain was doing ok on a slow process of recovery but has had a few setbacks.
He is delirious due to drugs/ lack of sleep and food.
I cannot believe how bad this desease/virus can be and Iain is one of many.

I just want to put the point across that statistics show the average age of the many deaths is 60 years old.
Most of you on this forum are near to that age or like myself and many others over it.
We all need to continue to self isolate and be soo careful should you choose to go out.

Hopefully Iain will turn another corner today.

Hello Sarah, Malc and Julie. Thank you for the updates, they are incredibly informative. Although incredibly scary we think ALL people should be able to read about someone's battle through this terrible virus. It would certainly concentrate all minds. Thank you for your open honesty and we continue to pray, as you well know. Lots of love, David and Anne. Xx

11.46AM Yesterday

Hi spoken to the nurse his oxygen levels are still a bit up and down.
He’s also been vomiting a little bit again today which they think it’s because of the amount of sputum on his chest.
He is still coughing it up.
She said they doctor is reviewing him and he may go to Ward this evening or in the morning [hopefully in the morning].
She said they’re all really pleased he’s making progress.
She’s also asked me to send some pictures as he’s been asking about his little boy. But not his wife how rude!!!
But she said he is doing really well. Xx

18.36PM yesterday
Spoke to a nurse who just said he’s the same no change.
She was unable to give anymore information as she didn’t really know.
Hoping dr will ring me but at least he seems to be staying in intensive care at the moment xx

22.42PM yesterday

Hi sorry it’s late just spoken to the dr.
He said Iain’s had a good day again and was pleasing them all with his progress.
His oxygen is lower but still up and down.
He said his liver function is worse but to expect this as the blood results can take a few days to correct themselves and That the antimalarial drug has been shown to cause this!
They’ve not started any antibiotics yet as he’s not showing any signs of infection.
But they will monitor.
He said they are going to discuss over the next two days about going to a ward as the ICU environment is not good for awake patients.
He said he’s pleasantly confused still and they expect this but it is improving.
He said he is making baby steps.
He said he’s still poorly and he’s not out of the woods yet as this virus is so unpredictable but each day he was showing small amounts of progress.
He stressed again that the ventilation will have had a huge effect on his body and it will take time particularly due to the length of time he has been ventilated.
He also said (which was upsetting) did they tell you how severely poorly he was, they haven’t got anyone that young that’s been that poorly with them so they are really pleased he’s making progress.
I said that Iain is normally so robust and just gets on with things etc and he said yeah this virus is awful and Iain has been unlucky in how extremely poorly he got.
He said he hopes he has another settled night and that he will ring if any problems. Xx

7.50AM today

Hi Iain had another stable night.
He is still confused. They’ve said they will discuss going to a ward today.
Mike would you ask Mo re liver function test as well. Is it something that can be rectified?

Small steps of progress, and no matter how small it is better than stepping back.

Mike texted with Dr Mo"s answer.
Yes he said the liver is likely due to the virus + drugs, but not too worry, the liver is one of the strongest organs in the body and can take a lot!
It will just take a few days to recover.

Small progress, baby steps. I think we were all hoping for miraculous improvement, but it's not happening yet, good luck Iain. We're all rooting for you.

Small,steps but all in the right direction
Sounds very positive but still keeping fingers crossed for you all

Yes I do Eric, and like you say from 3 metres away.
She has completed 14 days isolation yesterday and has been nowhere apart from the garden of there house!
Callum as you know was born massively premature at 26 weeks and this has left him with cerabel palsy of the legs.
She has a gadget from the NHS to help strengthen his legs and he is doing really well and will walk. it is just taking longer.
Other than that Callum appears to have no other real issues apart from he does not sleep well!!
THAT is proving hard for Sarah dealing with it all on her own.
But Callum keeps her focused 24/7.
She knows the real hard work will again start when Iain does get home as we are under no illusion the full road to recovery could be along one.
Callum is currently enjoying his new Tiger trampoline which took me and hour and 10 mins to put together
Pictures put on here with Sarahs permission

That will strengthen his legs and tire him out so he sleeps. Win Win

malc87 wrote:Callum is currently enjoying his new Tiger trampoline which took me and hour and 10 mins to put together

Pedantic.

Tony_d123 wrote:That will strengthen his legs and tire him out so he sleeps. Win Win

Is that one of Triumph's accessories?